I went into this whole thing with less anxiety and worry because, “I’ve been through this before with Fulton! I know what to expect!” And it’s true, I did know what to expect, up to the point where Teddy’s recovery diverged from Fulton’s. The last few days have been humbling for me as Teddy struggles…
What I realized as I met with Teddy’s surgeon on Monday, was how little I remembered of the technical details related to Fulton’s spinal fusion. I wish I would’ve taken more notes because as we discussed Tuesday’s game plan I was surprised at what I’d forgotten. (Like the fact that Fulton had a small opening…
Welcome to my first blog entry post Seven Quick Takes. I’ll be honest; it was nice to not arrive at Thursday evening wondering what I was going to write about, wracking my brain for ideas and becoming frustrated that I was losing precious sleep in the process. While I was not shocked that many readers…
Seven years ago this month, I started “filling in” as the host for the very popular Seven Quick Takes link-up. One month later, on December 5th, 2014 I became the new permanent home for Jen Fulwiler’s blog party baby. Seven Quick Takes celebrated it’s seventh anniversary in October 2015 and I celebrated with Link-toberfest. At…
Happy Friday! How about a round up of everything I’ve done this month besides launch a book and complain? Let’s go! 1. The younger three and I went to Valley Forge…on my 20th wedding anniversary. (Don’t worry romantic stuff later!) I’d been wanting to go for awhile but had waited until the visitor’s center was…
I think I’m burnt out. Which is discouraging since we’re only nine weeks into this school year. Thankfully, we’re off next week but, for better or worse, I will be busy catching up on everything that’s been slipping through the cracks. I’m doubtful it will seem like much of a break. I know why I’m…
and why I put the term in my title anyway. I know the majority of my readers are not the parents of disabled children, and so you may be wondering what the point of this post is. You’re probably completely unaware that there’s actually a controversy over the use of the term “special needs” in…
Eighty copies of my book finally arrived at my house this week! Everyone in the house was excited for me for all of 60 seconds before asking what was for dinner, what were we doing that night, did schoolwork need completed before screen time, etc. It was a nice 60 seconds. View this post on…
I created a huge, beautiful spreadsheet detailing everything I need to do to successfully launch my book by October 8. The only thing I couldn’t come up with? A topic for this week’s blog post. So just a few Quick Takes in the mean time. First, know that the NIGHT OF DESTRUCTION was just as…
Because I write my takes chronologically the most important Take is at the bottom so be sure to read to the end! My goal last week was to get a Quick Takes post up sometime Friday evening, however just before 5 p.m. I got a call that let me know my apostolate Accepting the Gift…
Enjoy some pictures from our trip taking Addie to Cleveland State University. I’ll be updating through the rest of today. We’ll drop her off at her dorm Saturday morning and then head home. Edie and I arrived back in New Jersey Saturday evening. Addie has already texted me about all the swag she’s picking up…
All the homeschoolers in the house, make some noise!!! St. Bruno the Great homeschool has four students this year: Byron, senior; Edie, sophomore; Fulton, 8th grade; and Teddy, 5th grade. We’re going to continue with our classically inspired, “hot mess” style curriculum for the umpteenth year in a row. Let’s jump into all the details…
It’s Spinal Muscular Atrophy Awareness Month! Or as some are dubbing it, SMA Pride Month! The two titles show the two sides to the SMA community; the adults living with SMA, and the parents of children with SMA. Most of the time, we all get along in our social media groups and at events. But…