My Moral Dilemma As A Catholic SMA Mom


Most Popular, SMA Posts

Living life as a devout Catholic, one who feels that everything the Church teaches applies to your everyday life, is hard. At best, we are misunderstood, our decisions considered backward or misguided. At worst, the world can be unaccepting and hostile towards those who choose to make sacrifices and hard decisions based on matters of […]

08/11/2015

{SQT} Seven People Sticking It To SMA


Seven Quick Takes, SMA Posts

Spinal Muscular Atrophy Awareness Month will permeate Seven Quick Takes this week, not with depressing statistics, but, in keeping with yesterday’s theme, by featuring seven individuals who are giving SMA the middle finger. Instead of laying around and being miserable (as society might expect), they are out kicking a$$ in their respective fields and giving […]

08/07/2015

I’m Guest Posting Across the Internets


SMA Posts

Afternoon readers! Just a heads up that today I’m guest posting at Svellerella about ‘Five Ways Being a Special Needs Mom Has Made Me A Better Person.’  #1 I’ve come to see there’s no such thing as a perfect child, except in that every child is perfect just as they’ve been created. I’ve stopped judging children […]

08/05/2015

The Week of Awesome #MDAcamp


SMA Posts

MDA Camp, how do I love thee, let me count the ways! PHOTO DUMP! All images are from the MDA Philadelphia Facebook page. All campers and volunteers sign waivers to allow their photos to be taken and shared publicly. I invite you to like their page so you can view the rest of the photos from their June […]

06/22/2015

{SQT} The Respiratory Edition


Seven Quick Takes, SMA Posts

Happy Easter readers! It was not my intent to take a week off writing. Certainly, I knew celebrating Easter with out-of-town family would delay posting, however, I didn’t expect to spend time at the hospital with Fulton, and as such I’ve been preoccupied.  Thankfully, he’s doing well, but you’ll have to tolerate seven takes all about […]

04/10/2015

{SQT} Seven Things To Do When A Loved One’s Child Receives A Life Changing Medical Diagnosis


Most Popular, Seven Quick Takes, SMA Posts

Lately I’ve been receiving a bunch of emails from people facing difficult medical diagnosis’, either of their child or the child of a close friend or family member. First, I’m deeply humbled that these people haven chosen to reach out to me (of all people) to seek advice. I mean, how do they know I’m […]

09/26/2014

Not the Usual Back to School Post


SMA Posts

Did you survive your first day back to school? To my public/ private school friends, did you weep tears of joy or relief at sending your growing babies away on the bus? To my homeschooling sisters, did everyone make it through the day without tears??? I only had four of my five cry, so I […]

09/03/2014

Saturday’s Surprise


SMA Posts

Looky looky what the little boys got this weekend! Those are two handmade quilts comprised of sixteen cross stitched squares each, all carefully crafted with love by volunteers for Cole’s Quilts. Organized by Linda Sietsma-Zuroff, Cole’s Quilts donates beautiful quilts to children with Spinal Muscular Atrophy. Linda contacted me more than a year ago about […]

08/25/2014

The Power of Asking the Internet Or THANK YOU!


SMA Posts

On Monday, I did a post that detailed several different options for transporting a wheelchair dependent friend or family member onto the beach. I wanted to shine the light on the many products that are available for families like mine, and hopefully help those who were unaware such devices existed. One product I highlighted was […]

08/08/2014