Category: SMA Posts

Sunday’s Best Pimped Out Ride

Linking up with Grace for her Sunday Best….late Monday night and chalking it up to the time zone difference. First  and foremost, we got a new handicap van! It’s perfect! And now let me back up and retell the rest of my day because otherwise you won’t be able to fully appreciate the epic awesomeness of it Read More

Life With Fulton: Taking The Show On The Road

Welcome to the first post in a sporadic series about life with Spinal Muscular Atrophy, Mantoan style. I hope to give my readers a glimpse into our “normal.” My goal is not to invoke pity about our situation or platitudes about our extraordinary abilities, but to reveal that God does indeed qualify the called rather than the other way Read More

Why I Recommend “Arise From Darkness”

I have mentioned on ye olde blog here Father Benedict Groeschel’s book “Arise From Darkness” a couple of times; and I’m quick to recommend it in comboxes through out the world wide web. I was reminded of it the other day after my niece emailed me to answer some questions for her religion assignment. I Read More

The Friends I Didn’t Know I Needed

A couple of months back I picked up a copy of “Bloom: Finding Beauty in the Unexpected“ by Kelle Hampton at my local library. Some of my favorite bloggers had suggested it and I love Kelle’s Instagram feed so I thought I’d give it a try. Ten minutes later, I’m in the children’s reading section, squatting Read More

{SQT} Praying For A Healthy Christmas

1. We kicked off the week by taking Fulton to the ER on Sunday morning with breathing difficulties and a fever. I was thinking pneumonia and overnight admission, but thankfully, it was “only” a double ear infection, cold and dehydration combo that came out of nowhere. 2. We were discharged after eight hours of observation. Read More

God Didn’t Answer My Prayer

My sister, my father and I managed to catch my mom completely off guard on Saturday with a surprise party at my parent’s house. After standing slack-jawed in the kitchen doorway for a full two minutes, my mom enjoyed visiting with friends and family who came to celebrate her upcoming 60th birthday. It was the Read More

Seven Things You Should Know About SMA

Since starting this blog, I’ve only briefly mentioned the disease that afflicts my two youngest sons. If you’ve spent any time with me here, you’ve read about wheelchair crashing and hospital stays, but only as they relate to our everyday life. I’ve shied away from talking too much about Spinal Muscular Atrophy, or SMA, because Read More

Party Prep and Celebrations Abound

So we’re home and life is picking right up where it left off. However, I’m continually surprised because I keep thinking it’s Monday. I’m making this post a double linky (if such a term exists.) Right before Fulton’s hospital stay, we hosted our annual Nativity of St. John the Baptist party. Some people open their Read More

Reflections on Childhood Innocence from the Hospital

I tell you the truth, anyone who will not receive the kingdom of God like a little child will never enter it” Mark 10:15 I hate to admit it, but I’m enjoying my time in the hospital with Fulton. His feeding tube surgery went off without a hitch, and he’s recovering nicely with no complaints Read More

Ok, seriously. No jokes.

Note: This is a serious, laying my soul bare kind of post. If you want to read something funny, check back later this week. The toughest thing about writing a humor blog is that life tends to have periods when nothing seems humorous. I’ve been struggling with lots of un-funny stuff for weeks now, and Read More

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