and why I put the term in my title anyway. I know the majority of my readers are not the parents of disabled children, and so you may be wondering what the point of this post is. You’re probably completely unaware that there’s actually a controversy over the use of the term “special needs” in…
It’s Feeding Tube Awareness Week. When I first heard of it, I didn’t know what kind of awareness I was supposed to spread- is there anyone out there who is afraid of feeding tubes? Are there still people who are ignorant of them? I suppose there must be; I’d never heard of them until 10…
We are officially six months out from Fulton’s spinal fusion surgery. While we will be sticking with some of the care methods we adopted during his recovery, life, for the most part, has gone back to normal for him and us. Now that we are past the pain and uncertainty of recovery, I can reflect…
I remember the first time Fulton asked me if he would be able to walk when he was an adult. I was getting him ready for bed, when BAM I was hit between the eyes with his innocent question. I remember answering him in a matter of fact way, “No, you’ll always need a wheelchair.”,…
Lately I’ve been receiving a bunch of emails from people facing difficult medical diagnosis’, either of their child or the child of a close friend or family member. First, I’m deeply humbled that these people haven chosen to reach out to me (of all people) to seek advice. I mean, how do they know I’m…