Parenting a Child with Disabilities

Although this isn’t a blog about Spinal Muscular Atrophy and special needs parenting per se, SMA affects every aspect of our lives. I created this page to share Fulton’s and Teddy’s back stories, links to my most recent posts about SMA and special needs parenting, and links to SMA resources.

For a quick background on this neuromuscular disease I recommend starting with my post Seven Things You Should Know About SMA.

These are some of my top posts about SMA and special needs parenting, plus a link to a book I wrote on how to care for yourself as a special needs mom.

Purchase my book at:

We have a great devotion to Archbishop Fulton J. Sheen, who was made Venerable on Fulton’s 4th birthday, June 28, 2012. We pray for a miracle through his intercession and eagerly anticipate seeing him declared a saint in our lifetime. We also seek the prayers of Bl. Herman of Reichenau . For more more information I recommend these websites:

If you are the parent of a child with SMA, or other serious medical condition, feel free to email me with any questions or just to vent. I understand! I’ve been there! It would be my pleasure to correspond with you.