because joy is the goal, not perfection
Thanks to all the readers, new and old, who have stopped by over the last couple weeks to check out my posts about Spinal Muscular Atrophy and how it affects our family. I asked Facebook if there were any additional questions I should answer and I got one I wasn’t sure how to answer and …
Continue reading “{SQT} One Stop Shopping for SMA Awareness”
Who else is swimming in humidity!? I love it! I can’t believe that May is almost over and I haven’t snuck away to the beach yet. Darned extra curriculars! 1. I’ve been scrambling to plan out all the details of our girls camps for next weekend, which rates somewhere between letting my toddler comb my …
Happy Easter readers! It was not my intent to take a week off writing. Certainly, I knew celebrating Easter with out-of-town family would delay posting, however, I didn’t expect to spend time at the hospital with Fulton, and as such I’ve been preoccupied. Thankfully, he’s doing well, but you’ll have to tolerate seven takes all about …
*MWAH!* That’s the sound of me giving each of my wonderful friends a huge smooch on the cheek. That includes you bloggy readers! In anticipate of Saturday’s Ugly Sweater Run, I spent a chunk of time last week spreading the word about 35K For SMA over as much of social media land as I could, …
Continue reading “#35K4SMA You Guys Are More Awesome Than My Sweater”
Since starting this blog, I’ve only briefly mentioned the diagnosis of two youngest sons. If you’ve spent any time with me here, you’ve read about wheelchair crashing and hospital stays, but only as they relate to our everyday life. I’ve shied away from talking too much about Spinal Muscular Atrophy, or SMA, because I didn’t …
Continue reading “Spinal Muscular Atrophy Awareness Month Facts”