Tag: SMA Posts

{SQT} One Stop Shopping for SMA Awareness

Thanks to all the readers, new and old, who have stopped by over the last couple weeks to check out my posts about Spinal Muscular Atrophy and how it affects our family. I asked Facebook if there were any additional questions I should answer and I got one I wasn’t sure how to answer and Read More

{SQT} Gather ’round the Campfire

Who else is swimming in humidity!? I love it! I can’t believe that May is almost over and I haven’t snuck away to the beach yet. Darned extra curriculars! 1. I’ve been scrambling to plan out all the details of our girls camps for next weekend, which rates somewhere between letting my toddler comb my Read More

{SQT} The Respiratory Edition

Happy Easter readers! It was not my intent to take a week off writing. Certainly, I knew celebrating Easter with out-of-town family would delay posting, however, I didn’t expect to spend time at the hospital with Fulton, and as such I’ve been preoccupied.  Thankfully, he’s doing well, but you’ll have to tolerate seven takes all about Read More

#35K4SMA You Guys Are More Awesome Than My Sweater

*MWAH!* That’s the sound of me giving each of my wonderful friends a huge smooch on the cheek. That includes you bloggy readers! In anticipate of Saturday’s Ugly Sweater Run, I spent a chunk of time last week spreading the word about 35K For SMA over as much of social media land as I could, Read More

{SQT} Training For The Rest Of Us

Thank you for all the early support for 35K For SMA! Solicitation letters and emails are in the works! I registered for my first race and after next Saturday, press releases are going out, because it’s go big or go home around here! (All the exclamation points all the time!!!!!) At least until the school Read More

{35K4SMA} The Craziness Begins

First off; if you’re going to post that you’ve got an exciting announcement coming you should realize two things. 1. People will assume its much cooler and greater than what you’re actually going to do. 2. Your parents should be notified first so they don’t freak out and expect some horrible bombshell. (Sorry mom!) So Read More

Life With Fulton: Taking The Show On The Road

Welcome to the first post in a sporadic series about life with Spinal Muscular Atrophy, Mantoan style. I hope to give my readers a glimpse into our “normal.” My goal is not to invoke pity about our situation or platitudes about our extraordinary abilities, but to reveal that God does indeed qualify the called rather than the other way Read More

The Friends I Didn’t Know I Needed

A couple of months back I picked up a copy of “Bloom: Finding Beauty in the Unexpected“ by Kelle Hampton at my local library. Some of my favorite bloggers had suggested it and I love Kelle’s Instagram feed so I thought I’d give it a try. Ten minutes later, I’m in the children’s reading section, squatting Read More

Seven Things You Should Know About SMA

Since starting this blog, I’ve only briefly mentioned the disease that afflicts my two youngest sons. If you’ve spent any time with me here, you’ve read about wheelchair crashing and hospital stays, but only as they relate to our everyday life. I’ve shied away from talking too much about Spinal Muscular Atrophy, or SMA, because Read More