Tag: spinal muscular atrophy

{SQT} One Stop Shopping for SMA Awareness

Thanks to all the readers, new and old, who have stopped by over the last couple weeks to check out my posts about Spinal Muscular Atrophy and how it affects our family. I asked Facebook if there were any additional questions I should answer and I got one I wasn’t sure how to answer and Read More

{SQT} The Respiratory Edition

Happy Easter readers! It was not my intent to take a week off writing. Certainly, I knew celebrating Easter with out-of-town family would delay posting, however, I didn’t expect to spend time at the hospital┬áwith Fulton, and as such I’ve been preoccupied. ┬áThankfully, he’s doing well, but you’ll have to tolerate seven takes all about Read More

{35K4SMA} The Craziness Begins

First off; if you’re going to post that you’ve got an exciting announcement coming you should realize two things. 1. People will assume its much cooler and greater than what you’re actually going to do. 2. Your parents should be notified first so they don’t freak out and expect some horrible bombshell. (Sorry mom!) So Read More

Seven Things You Should Know About SMA

Since starting this blog, I’ve only briefly mentioned the disease that afflicts my two youngest sons. If you’ve spent any time with me here, you’ve read about wheelchair crashing and hospital stays, but only as they relate to our everyday life. I’ve shied away from talking too much about Spinal Muscular Atrophy, or SMA, because Read More